Family Stories

Wish Upon a Star:
Madeline Collin

My story begins twelve years ago. On Thursday 22nd September, 1994, I gave birth to my daughter Madeline....

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Gaucher Progress – Parkinson’s Progress … Tony Futerman PhD

“It is with extreme gratitude that I once again acknowledge the fantastic support of the Children’s...

Research Update:
Tony Futerman P...

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...