Family Stories

Sunshine Baby:
Ryan James Conklin

On October 23, 1997, we welcomed our second son, Ryan James Conklin into the world. Ryan’s 2 1/2 year...

Fundraising Ideas

Wheatley’s Honor Their Son
Lincoln Lewis Wheatley

Zachary and Kelly Wheatley will host the 3rd annual “Play For Gaucher” fundraising event on March...

Recent News

Gaucher Progress – Parkinson’s Progress … Tony Futerman PhD

“It is with extreme gratitude that I once again acknowledge the fantastic support of the Children’s...

Research Update:
Tony Futerman P...

Dr. Tony Futerman of the Weizmann Institute of Science in Israel receives research funding from the Children’s...

Sweet Willow:
Willow Ansley Jayn...

On January 8, 2009 I found out I was pregnant.  I was very excited and nervous at the same time.  This would be my...

Living with Gaucher:
Emily Filo...

In 2006, I met the man of my dreams, unexpectedly, at the cross roads of life; we married and waved goodbye to our...

Sponsor the Macres
“Heav...

The family honors their son with a 41 mile Heaven Birthday Ride – Sponsor the ride and help find a cure...