How To Submit Your Family Story
To submit your family story follow these simple directions:
Website
1. Write your story on a WORD document – it can be any length (generally 700 to 1800 words) – click here to read other family stories.
2. Select 10 to 15 of your favorite pictures.
3. Email your story and pictures to research@childrensgaucher.org
Helping Hands Newsletter
1. Follow steps 1 through 3 above
2. Compile a database of family, friends and business associates – Newsletters received by your database will be personalized to your child
– Families are welcome to share their story on the website AND in the Helping Hands newsletter
– If you are interested in sharing your story in the Helping Hands newsletter please email the CGRF by Clicking Here and we will provide further explanation and instructions.
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Our research may help 20 other childhood diseases. There may also be an important connection between Gaucher Disease and Parkinson's.
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